To an outside observer, traumatic brain injuries (TBI) are invisible…and medically, the injuries are not well understood. As a result, those who suffer often don’t receive adequate—or even minimal—treatment. But the truth is that TBI changes lives. Any head injury is a tragedy, but when TBI happens to children, adolescents, or young adults, the tragedy is magnified. An article on NJ.com says it best:

Imagine you are a parent whose child has sustained a brain injury through something as enjoyable as playing a sport or as horrific as abuse by a caretaker or as patriotic as serving our country as a member of the armed forces. Wouldn’t you want the best system of care possible to maximize the chances of recovery and quality of life for your child? There are many tragic stories about children and youth with brain injury; Congress has an opportunity to provide support and hope for them.

That’s the goal of H.R. 2600, a new bill introduced in the U.S. House of Representatives. Also known as the National Pediatric Acquired Brain Injury Plan Act (PABI Plan Act), this bill would help create a standardized, evidence-based system of universally available care for young people (ages 25 and younger), including those serving in the armed forces. The PABI Plan Act would ensure care at all stages of brain injury, beginning with prevention, and including emergency and acute treatment in medical facilities, reintegration into schools and communities, and transition into an adult system of independent living.

H.R. 2600 was introduced to Congress on July 20, 2011 by Republican Leonard Lance of New Jersey, and it has been referred to committee. But the bill has seemingly stalled, despite the fact that the bill has more than 100 co-sponsors in a rare bipartisan effort. Co-sponsors from North Carolina include:

• Rep. Walter Jones [R, NC-3]
• Rep Larry Kissell [D, NC-8]
• Rep. Mike McIntyre [D, NC-7]
• Rep. Bradley Miller [D, NC-13]

Funding for H.R. 2600 would come from discretionary money held by the Secretary of Health and Human Services, and would not add to the budget deficit.

This is an important bill that would help children and young adults recover as much as possible, and receive support as they age into adults.

“The ultimate goal of the PABI Plan Act is to maximize recovery, enhance quality of life and ensure that New Jersey — and American — youth have the best chance to live productive and meaningful lives,” said Barbara Geiger-Parker, president and CEO of the Brain Injury Association of New Jersey, a nonprofit organization whose mission it is to support and advocate for individuals affected by brain injury and raise public awareness through education and prevention.

We urge concerned individuals to contact their Representative and voice support for the PABI Plan Act. To find contact information for your Representative, click here:  GovTrack.us

To read the full article on NJ.com, click here:  More support needed

from 9News.com

Dylan Hearn probably has a great future ahead of him; he is wise beyond is meager years. The 7-year-old Colorado boy has a personal crusade to made sure that everyone takes concussion seriously.

And he knows what he is talking about:  He suffered two concussions in the past six months. The first was playing football, and the second happened when he ran into the dishwasher at his home (he was chasing his brother.) The injuries put him out of commission for about a month, including his favorite activities—no TV, no video games, no reading.

According to an article on 9News.com, Dylan says:

“It hurts,” said Dylan. “A lot of sick and dizzy. Sometimes, you have blackouts.”

Now, Dylan’s concussions are changing the way people around him view head injuries. For example, his baseball coach, Jeff Pigati, says that the determination of injury used to be totally in the hands of players. If they said they were feeling well enough to play, they played. But kids and athletes being what they are, they typically jumped back into the game sooner than they probably should have.  That’s what killed another boy, 15-year-old Jake Snakenberg:

Snakenberg died in September 2004 after sustaining a serious concussion in a football game. Doctors believe it was his second concussion in a week and he died of Second Impact Syndrome. Just before the game, he told everyone he was fine.

That’s why there is now a law in place called the Jake Snakenberg Act. It requires all coaches, like Pigati, to undergo concussion training to look for signs of possible brain injury.
Dylan and Alex Hearn [Dylan's mother] applaud the new measures.

[If you would like to see the online training program for coaches, click here:  CDC HeadsUp]

Now, coach Pigati watches kids for head injury and tell-tale symptoms, and he’s happy to do so. Like most coaches, Pigati takes the health of his players very seriously. He applauds the Colorado law requiring coaches to undergo concussion training.

And Dylan? He likes the law, too. Why?

“Because it’s safe,” said Dylan.

From the mouths of babes.

To read the full story on 9News.com, click here:  7-year-old applauds new concussion rules

What survives of a marriage when a spouse suffers brain injury?

According to an article in The New York Times, that’s the question being investigated by Dr. Jeffrey S. Kreutzer and other psychologists at Virginia Commonwealth University (V.C.U.) in Richmond. In addition, the psychologists are working to develop marriage counseling techniques for affected couples.

According to a 2007 article published in the journal NeuroRehabilitation, when a spouse suffers a brain injury, the risk of divorce is surprisingly low—approximately 17 percent. Well below the national average for uninjured couples. But the statistic may not be an accurate reflection of the health of the marriages—the couples aren’t necessarily happy. According to Dr. Kreutzer: “While people may technically be married, the quality of their relationship has been seriously diminished.” According to The New York Times:

Dr. Kreutzer and other psychologists at V.C.U. are among the few therapists in the country trying to develop marriage counseling techniques tailored to couples dealing with brain injuries. Traditional marriage counselors often hope to restore people and their relationships to their original luster. For Dr. Kreutzer and his team, recovery often means teaching uninjured spouses to forge a relationship with a profoundly changed person — and helping injured spouses to accept that they are changed people.

“Changed” doesn’t begin to describe what some spouses experience.

Depending on the severity of the brain injury, an individual may be considerably changed by the injury…so much so that he or she may seem like an entirely different person. Injured people often have difficulties with attention, concentration, memory, reading, writing, and speaking. They may appear confused, have trouble with physical coordination, and become impulsive—buying expensive items they can’t afford, take off on trips without notification, or other potentially damaging behaviors. And then there are the possible personality changes:  aggressiveness, irritability, mood swings, depression, lack of motivation, and poor judgment. While every person experiences a different constellation of symptoms, even a small number of these symptoms can make the spouse of a brain-injured individual wonder what happened to the person they married.

The article in The New York Times talks about the experiences of Terry Curtis—who suffered brain injury from a tumor and the surgery needed to remove it—and his wife Vicky:

Mrs. Curtis, 60, was once drawn to her husband’s “sparkle,” she said. After the injury, he “flat-lined” emotionally, and he suffers from depression, anxiety and a lack of motivation. Her husband sometimes makes erratic decisions, she added, like the time he decided to take a do-it-yourself approach to the plumbing at their home in Coralville, Iowa. “Not a good picture when I got home,” Mrs. Curtis said. “And you can yell at him like a little kid, but he didn’t know any better.”

Once a software programming analyst, Mr. Curtis, 57, has “a lot fewer interests” than he did before the injury, and he estimates he has lost 90 percent of his friends.

“It’s a new you,” he said, “and they just can’t cope with that.”

It’s worse for a spouse, who lives with the changed person. According to the psychologists, the factor that seems to keep marriages from falling apart is guilt. It’s hard to be the kind of person who gets a divorce from a brain-injured person. The goal in therapy is to help the couple see that the person will not ever be exactly the same…that they will have to deal with a “new normal” in their lives…but that it may be possible to rediscover a new facet to the old relationship.

That may be the real definition of hope.

To read the full article in The New York Times, click here:  When Injuries to the Brain Tear at Hearts

To learn more about traumatic brain injuries, visit our dedicated webpage here:  HensonFuerst TBI page